Tag: zellweger baby support network
member name: Pam F.
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June 14, 2006 06:15 PM EDT --
Compliments of Gather we have this Fantastic Gather Mug up for Auction on Ebay!
Click on the picture above to go to the auction.
This Gather Mug can not . . .
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August 14, 2006 02:01 PM EDT --
Blanket
Auction to send Baby Zane to Spain.
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. . .
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May 30, 2007 01:45 PM EDT --
How do I tell her story? To do that I must agree to "go there." "There", being that desperately sad place, where I remember her smell and how she felt in my arms. . . .
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December 10, 2007 12:01 PM EST --
These stories are memorials for the babies we have loved and lost to the rare syndrome ... Zellweger Syndrome.
Laken . . .
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July 17, 2006 01:37 PM EDT --
What was I thinking
To let myself hope
For a miracle to happen
Inside a womb closed
For my will to be spoken
And a new life to begin
For symptoms to be real
And a tiny heart to beat within . . .
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July 16, 2006 12:42 PM EDT --
Please take the time to view our new video, created by, Pastor Dan Lirette from In Christ Ministries, based in Canada.
The song is by Natalie Grant, "Held". The children . . .
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January 12, 2006 11:52 AM EST --
Life with Olivia (a true story) Part 5a
All rights reserved 2006 Pam Freeth
(By popular demand and for easier reading I am shortening each segment from 8-10 pages to 5-6 pages.) . . .
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August 09, 2006 11:42 AM EDT --
Zane Rock was born to Brandon and Holly Rock after a normal pregnancy. They knew something was wrong shortly after he was born and . . .
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February 26, 2007 02:00 PM EST --
Two years ago we started the Zellweger Baby Support Network and we have since had many families join us. Zellweger Syndrome is so rare that the majority of people have never heard . . .
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July 13, 2006 12:56 PM EDT --
You shake my heart
My head bows down
A tear falls down my cheek
Can it be that you
This month will be two
With your halo catch my balloon
White fluffy cake with Angels wings
We celebrate . . .
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January 10, 2006 08:09 AM EST --
Life with Olivia part 4
©2006 Pam Freeth All rights reserved
August 31, 2004 at 10:10 PM EDT
I am sorry that I haven't posted earlier today. I was very tired this morning. I went back . . .
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January 13, 2006 11:41 PM EST --
Life with Olivia (a true story) Part 5 BAll rights reserved Pam Freeth 2006
September 23, 2004 at 08:10 AM EDT
This post is being updated by Monica. I received a call this morning from my Mom with an . . .
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May 10, 2006 08:38 PM EDT --
This group is designed to honor the children born with Zellweger Syndrome and other terminal orphan syndromes/diseases. It is also for the parents to post their poetry and letters and stories of their . . .
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